The Health Outcomes Observatory [3] (H2O) is delighted to announce that H2O has launched observatories in the Netherlands, Austria and Spain, with Germany and Denmark to follow. H2O is organising an event to celebrate these launches and demonstrate how bringing patients' voice into healthcare decision making can bring the European Health Data Space (EHDS) to life. This event will show how H2O can be the first practical demonstration of EHDS’ potential to improve patient outcomes, increase data flow, and build more sustainable and efficient healthcare systems.

The presentations and roundtables during the event will:

•                     Discuss the potential H2O holds for national healthcare systems and how it can be a catalyst for sustainable and value-based healthcare systems around the world.

•                     Show how H2O can be the first practical demonstration of the EHDS’ potential to improve patient outcomes, increase data flow, and build more sustainable and efficient healthcare systems.

•                     Highlight the benefits of patient-centred partnerships and the role of data in driving forward healthcare innovation.

•                     Create momentum around the need for linked and standardised data a forum for a multistakeholder discussion.

Agenda

10.30 – 10.40 - Welcome and housekeeping by moderator - Elaine Cruikshanks, Acumen Public Affairs Founding Partner

10.40 – 11.00 - Opening address by

• Tanja Stamm, Head of Section for Outcomes Research, Center for Medical Statistics, Informatics and Intelligent Systems at the Medical University of Vienna (H2O Co-Lead)
• Anca Toma, European Patients' Forum (EPF) Executive Director

11.00 – 11.20 - Presentation: The impact of big data. How AI driven by data can change the health care landscape by Elena Bonfiglioli, General Manager Healthcare, Strategy Lead Pharma and Life Sciences at Microsoft

11.20 – 12.45 – Roundtable discussion: Integrating H2O into healthcare systems’ future: national perspectives on the potential of H2O observatories by

• German, Spanish, Austrian and Dutch H2O observatories representatives
• Prof. Dr. Matthias Rose, Medical Director Medical Department, Division of Psychosomatic at Charité – Universitätsmedizin Berlin
• Roberto Saldaña, Vice-president of the H2O National Observatory for Spain and Director of innovation and citizen participation in Eupati Spain and EFCCA Patient engagement
• Dr. Herwig Ostermann, Executive Director of the Gesundheit Österreich GmbH (GÖG), the Austrian Public Health Institute
• Herko Coomans, Supervisory Board member of the Health Outcomes Observatory H2O Netherlands Association (Vereniging H2O Nederland)
• Anca Toma, European Patients' Forum (EPF) Executive Director
• Yasmin Dias Guichot, Lead, Health Systems Transformation at the World Economic Forum

12.45 – 13.30 – Walk in lunch

13.30 – 15:05 - Roundtable discussion: Patient-centred partnerships: bringing the European Health Data Space to life by

• Fulvia Raffaelli, Head of the Digital Health Unit at the European Commission's DG SANTE
• Patrick Breyer, Member of the European Parliament and EHDS LIBE shadow rapporteur
• Pernille Weiss, Member of the European Parliament and ENVI committee member
• Dr. Jørgen Schøler Kristensen, Head of Corporate Management, Central Denmark Region, Chairman of the Danish Medicines Council (national HTA body) and former Chief Medical Officer of Aarhus University Hospital
• Dr Med Peter Gocke, Head of the Digital Health and Data Network of the European University Hospital Alliance (EUHA) and Chief Digital Officer at Charité – Universitätsmedizin Berlin
• Meni Styliadou, H2O Co-Lead, Distinguished Fellow, Data Sciences Institute, at Takeda Pharmaceutical
• Carmen Hurtado, Scientist at JDRF International (TBC)

15:05 – 15.25 - Presentation: Federated versus centralised data access - The benefits and challenges of federated patient data access by

Andrea Pescino, Partner and Founder StratejAI and member of the Partner Advisory Council (PAC) of Microsoft Corporation

15.25 – 15.45 - Closing remarks by keynote speaker

Tim Harford, Financial Times columnist, BBC broadcaster, and renowned economics author

 Register for in person attendance [2]

 Register for online attendance [4]

The full agenda and additional information is available here [1].

About the Health Outcomes Observatory (H2O) [3]

H2O is a public-private consortium drawing together patients, providers, regulators, and healthcare decision-makers who share an interest in putting patients at the heart of value-based healthcare. The aim is to bring Patient Reported Outcomes (PROs) into decision-making by giving patients the tools to measure PROs in a standardised way. If clinicians and patients speak a standardised PRO ‘language’, this opens up a new world of possibilities including;

•             improved access to data informing clinical decisions

•             Real World Evidence showing the status and dynamics of patient populations

•             higher quality and sustainability of care through more transparent evidence of outcomes

•             support for the design and direction of new treatment development