14h30
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Welcome - Marlene Mizzi, Member of the European Parliament
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14h35
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The European Commission’s work on rare cancers - Keynote address by Commissioner for Health and Food Safety, Vytenis Andriukaitis, European Commission
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14h50
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Living with sarcoma: a patient perspective & the presentation of the Sarcoma Policy Checklist – Estelle Lecointe, Sarcoma Patients EuroNet (SPAEN) and InfoSarcomes
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15h15
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Placing sarcoma within the broader context of rare cancers - Paolo Casali, EU Joint Action on Rare Cancers (JARC) and European Reference Network on Rare Adult Cancers (EURACAN)
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15h30
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Panel discussion and Q&A from the audience on the topic of: What can be done to improve the lives of people with sarcoma? Moderated by Marlene Mizzi, Member of the European Parliament
On the panel:
- Antoni Montserrat Moliner, Senior Expert for Cancer and Rare Diseases, European Commission
- Dr Peter Naredi, President of European CanCer Organisation (ECCO)
- Dr Nora Drove, Lilly Europe, Medical Director, Soft Tissue Sarcoma
- Estelle Lecointe, Vice-President of Sarcoma Patients EuroNet (SPAEN) and President of InfoSarcomes
- Professor Paolo Casali, Coordinator of the Joint Action on Rare Cancers (JARC) and organiser of the European Reference Network on Rare Adult Cancers (EURACAN)
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16h15
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Closing comments by Marlene Mizzi, Member of the European Parliament
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