14h30

Welcome - Marlene Mizzi, Member of the European Parliament

14h35

The European Commission’s work on rare cancers - Keynote address by Commissioner for Health and Food Safety, Vytenis Andriukaitis, European Commission  

14h50

Living with sarcoma: a patient perspective & the presentation of the Sarcoma Policy Checklist – Estelle Lecointe, Sarcoma Patients EuroNet (SPAEN) and InfoSarcomes

15h15

Placing sarcoma within the broader context of rare cancers - Paolo Casali, EU Joint Action on Rare Cancers (JARC) and European Reference Network on Rare Adult Cancers (EURACAN) 

15h30

Panel discussion and Q&A from the audience on the topic of: What can be done to improve the lives of people with sarcoma? Moderated by Marlene Mizzi, Member of the European Parliament

On the panel:

1. Antoni Montserrat Moliner, Senior Expert for Cancer and Rare Diseases, European Commission
2. Dr Peter Naredi, President of European CanCer Organisation (ECCO)
3. Dr Nora Drove, Lilly Europe, Medical Director, Soft Tissue Sarcoma
4. Estelle Lecointe, Vice-President of Sarcoma Patients EuroNet (SPAEN) and President of InfoSarcomes
5. Professor Paolo Casali, Coordinator of the Joint Action on Rare Cancers (JARC) and organiser of the European Reference Network on Rare Adult Cancers (EURACAN)

16h15

Closing comments by Marlene Mizzi, Member of the European Parliament