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Navigating Diagnostics Through the Lens of the Pharmaceutical Package


20 Mar 2024 09:30


European Parliament (room A5E3)


Health & Consumers

Event Location


Event Description

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MEP Stelios Kympouropoulos (EPP, Greece) in collaboration with EUCOPE and Novartis organises an exclusive in-person expert briefing session on the importance of early screenings and unmet medical needs. 

The session will take place on 20 March from 9:30 until 11:00 CET, at the European Parliament (room A5E3).

Exert briefing session titled “Navigating Diagnostics Through the Lens of the Pharmaceutical Package and Beyond” will delve into the transformative potential of screening in addressing unmet medical needs through the ongoing revision of the General Pharmaceutical legislation.

This session, aligned with the objectives of the Belgian Presidency, aims to underscore the pivotal role of screenings in early disease detection and treatment, particularly in the realm of rare diseases. Esteemed speakers will highlight the effectiveness of newborn screening in identifying rare conditions and underscore the importance of early detection in enhancing health outcomes for individuals affected by rare diseases. Furthermore, the session will explore the prospects presented by the potential implementation of an EU Action Plan on rare diseases, offering valuable insights and fostering discussion on the road ahead.


Day and Time: 20th March – 9:30 – 11:00 CET

Location: European Parliament (room A5E3)



The panel of experts comprises representatives from diverse stakeholder groups, including Prof. Alessandra Ferlini, serving as the Project Scientific Coordinator at Screen4care, Marie-Christine Ouillade, Chair of the Newborn Screening Alliance Committee at SMA Europe, Joshi Venugopal, who holds the position of General Manager and Head of Europe at Novartis, and a Commission and Parliament representatives (tbc). 


In order to process and grant access to the European Parliament the organising team will require some personal details to be shared with the EP service.




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