of all European Affairs Events, conferences, presentations and workshops.

Children and patients with rare diseases can't wait any longer for action on access to medicines.


20 May 2021 12:00 to 13:30




Health & Consumers

Event Description

On behalf of ECL, SIOPE, EPHA and EFPN, you are warmly invited to register and attend a policy dialogue on ‘The Revision of the EU Regulations on medicines for Children and Rare Diseases’

The objectives of this event are:

  • To consider and discuss actions that should be prioritised in Europe to accelerate timely access to high-quality, safe and affordable medicines for patients;
  • To inform a wider audience about civil society's recommendations for improving the 2000 Orphan Regulation and the 2006 Paediatric Regulation.

Invited speakers (from the European Commission, European Parliament, SIOPE, CCI Europe, ECL, EFPN and Member States) will reflect on how to improve both Regulations.

The event will take place on 20 May 2021 between 12:00 - 13:30 CEST on Zoom.

Please check out the agenda here:

Spaces are limited, please ensure you register in advance via this link:

After registering, you will receive an automatic confirmation email from Zoom containing your unique dial-in link. If you do not receive it, please check your spam/junk folder or contact

Video recording and screenshot images of speakers and the participants may be taken for internal reporting.




Deutsche Gesellschaft für Interbationale Zusammenarbeit (GIZ) GmbH
Programme Manager (m/f/d) Global D4D Hub Secretariat
GIZ GmbH (Deutsche Gesellschaft für Internationale Zusammenarbeit)
Advisor (m/f/d) Global D4D Hub Secretariat
European Institute of Peace
Fundraising Manager
Ambassade d'Irlande
Stage ambassade d'Irlande a Paris